Category Archives: The Daily Post

Treatment underway

To say I was apprehensive is to understate the way I was feeling as I walked the corridors of Blackburn Hospital on my way to the Chemotherapy Unit. The hospital was busy with lots of people talking and laughing, but I was very much in my own little bubble.

‘Can I help you, sir’ said a friendly voice and I noticed a hospital orderly alongside me. I told him where I was going and he smiled and pointed down the corridor.

‘Not far to go’, he said. Now why did he make that gesture – did I look lost, confused – doesn’t really matter, it was kind and timely.

I stepped out and pushed open the door that stated ‘PATIENTS ONLY’ and found myself in what looked like a departure lounge – armchairs and tables, interspersed with stands bearing monitoring machines. I gave my details to the receptionist and was casually told to sit anywhere and the nurses would be along shortly.

Hardly five minutes and two nurses armed with computer tablets introduced themselves, gave me a book an began to explain the procedure. They said it would be a while because the medication is only prepared once you arrive, but there were some preliminary things to get done anyway.

They fitted a cannula to my left hand and left me to read my Cancer Treatment book.

Returning with a vast array of liquids and various pipes and valves, they then proceeded to administer the medication and explained exactly what each was for, although I cannot recall now, but effectively they initial ‘shots’ were to prepare my system – anti-nausea etc etc.

I was hooked up and the timing was explained and I settled down to listen to a new audio book ‘The Extra Mile’ written and narrated by Kevin Sinfield – not that I think it needs my endorsement but well worth a read.

Time passed, lunch was served, more time passed and almost to the minute my treatment was over at the specified time. I was disconnected, gathered my things and headed for the main entrance of the hospital where my brother was waiting to take me home.

That was Tuesday and it is now Friday, so any side effects would have become noticeable by now, so here goes… hardly anything – in fact physically I feel much better than I did on Tuesday morning. My joints are not as stiff or so and I feel much more mobile. I was extremely tired on Tuesday evening and didn’t do a great deal the following day. Wednesday night I had an extended session of hiccups and some uncharacteristic heartburn.

The only thing that I am struggling with is ‘brain fog’ but I find if I make a proper list of things that need doing, action them one at a time and apply a bit of discipline, I’m managed to keep it under control and be productive.

So, no dramatic outcomes and all that is left to say is that I cannot praise the NHS enough. The vast unseen logistics that make this happen are astonishing and the cheerful, professionalism of the staff, from orderlies to surgeons is above and beyond, particularly considering the pressure they are under.

Time to Buckle Up!

As you will see, if you peruse the project pages, a little over 6 months has elapsed since I first went to the local clinic – coincidentally around the time of my birthday. I quite rapidly lost my sense of taste and appetite which made me think I had contracted COVID.

It soon became apparent that something else was going on and the initial blood tests led to scans, biopsies, more scans, lots of blood tests and around Christmas it was confirmed that I had Hodgkin’s Lymphoma.

More tests, a course of medications, more blood tests and I have received confirmation that my chemo-therapy is going to start next week. Next week I’ll present myself at the Chemotherapy Unit, Blackburn Royal Teaching Hospital for the first of a planned series of 6 treatments.

It’s a little daunting – what will it be like? how will I feel afterwards? I’ll be able to give an accurate account on Wednesday!! I am avoiding internet searching as that usually ends badly. I am restricting my research to what I receive from the hospital.

What I have learned about the Weasel is that it is aggressive and treatable with a 5-year survival rate above 90%, so all in all not a bad choice, if you have to chose. And let’s be honest, according to the stats cancer of one form or another will affect 50% of the population.

[ Weasel only accounts for about 2,000 cases p.a. so it is not particularly common. ]

It’s become very real, my appointment it set and I’m focused on 10:00 Tuesday 19th March 2023. There are some things I need to get done before then such as get organised with this site, make arrangements around the appointment as well as the normal churn of domestic chores – no escape!

[ I was listening to BBC Radio 4 the other day and segment about a musician talking about the onset of Parkinsons and how he had to make adjustments, but the thing that caught my attention was that he had named the tremor in his hand ‘Gavin’ ]

Gavin meet Weasel!!

Welcome to Project Weasel…

The idea for ‘Project Weasel’ took hold when I found out that I had Hodgkin’s Lymphoma. Not that I knew what it was, or what it meant and to be honest I still don’t. I made the decision that I would document the entire process from start to finish, early signs to treatment and beyond. So how best to do this and what purpose would it serve for the reader?

To begin, I thought why not approach this as a project, after all that is what I spend my time teaching, so let me see if I can apply a simple project management framework to the treatment. I then realised that this is just one facet, there are all the other things I am involved with – teacher, parent, friend etc and all of those ‘threads’ continue and I can relate this to a ‘programme’ that needs to be managed.

And what is it not going to be? Well, I do not want to be defined by this condition and I think it is all to easy to do that. There is much more to who I am than the fact that I have a medical condition. I also don’t want to elevate its importance – it is an intruder that has entered my body – an uninvited, unwelcome presence – to name it by its ‘official title’ lends status to it. That is why I have named it weasel, because it has exhibited the character of a weasel – sly, devious and aggressive. Quite apt for something that is lurking in my abdomen, evades easy detection and has helped to consume one-third of my body weight.

In addition to the formal steps of project weasel, and in parallel, I am going to include a day by day account of my observations – if you like, the subjective account to compliment the objective project account. I’ve also realised that there is a lot of ‘stuff’ inside’ my head that I want to share – stories, anecdotes, views and perspectives and so I want to include these and who knows maybe they will develop into something more substantial.

I think I am better equipped to deal with the logical progression of the treatment than the emotional roller-coaster. Sometimes I feel vulnerable or scared for no apparent reason. Sights and sounds may trigger thoughts or feelings, and every day bring a new set of challenges. My body aches, I don’t always have the energy to do the things I want or need to do; my movement is restricted and my attention span is greatly diminished.

Despite these challenges, I need to press on, otherwise it is all for nothing. In the main I am optimistic, I see a lot of positives ahead

So, welcome…